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Science Time Line 1939
26.7.1945: Election results: Labour Government (to 1951 1940s
and 1950s: Historical Background to Community Care Post war Britain provided a new moral culture for disabled people. Eugenics and social darwinism were discredited by their association with the Nazi policies and extermination camps. The fears of "racial degeneracy" that had shaped pre-war public policy for mental defectives were no longer acceptable. In the absence of an acceptable conceptual framework, mental defect became a health issue. The 1946 National Health Service Act defined a hospital as an institution for "the reception and treatment of persons suffering from illness or mental defectiveness" (section 79) and transferred local authority hospitals to the Minister of Health (section 6). The 1946 National Health Service Act stripped the Board of Control of nearly all its functions except those of providing an inspectorate of mental hospitals, especially with respect to compulsory detention. The stigma of disability was intense. In the early 1940s, for example, a mother who attempted to meet other parents of handicapped children to form a playgroup had her advertisement refused by her local paper because of the "shame and disgrace" of having a handicapped child. In 1946 The Association of Parents of Backward Children (now Mencap) was formed by parents concerned about the lack of support to help them maintain a child at home, and the isolation and poor facilities of the deficiency hospitals that were the only alternative. 25.11.1947 Foundation of the National Association for Mental Health (now MIND). This was a combination of existing organisations, partly merged in 1939 as the Mental Health Emergency Committee for war-time coordination. Its components were the Central Association for Mental Welfare (1898 National Association for the Care of the Feeble Minded), the National Council for Mental Hygiene (founded 1918) and the Child Guidance Clinic (founded 1927). The Association worked closely with the Ministry of Health and Board of Control. Pre-frontal Leucotomy in a thousand cases Pre-frontal Leucotomy in a thousand cases by Isabel Wilson and E.H. Warland published by the Board of Control. Science Time Line 1948
National Health Service Act came into operation The integration of the mental hospitals into the National Health Service was possibly the most decisive factor leading to a general move away from institutional policies in the 1950s. See 1959. Andrew Scull (1977, chapter 5) refers to studies of individual English mental hospitals, including Mapperley Hospital, Nottingham where inpatient numbers fell from 1948 due to changes in administrative policy, including avoiding admission altogether and early discharge of those who were admitted. In-patient numbers at Mapperley fell from 1,310 in 1948 to 1,060 in 1956. External
link to Community Care history about Mapperley
(On the Mental Illness Concerns All (mica) web site) The
first international classification of diseases, the Bertillon
Classification of Causes of Death was brought in in 1898. Revisions
came into effect in 1918 (ICD2), 1922 (ICD3), 1931 (ICD4), and 1940
(ICD5). In 1948 the International Classification of Diseases
in its sixth revision was extended to include non-fatal diseases.
The ninth revision was adopted in 1975, the tenth revision in 1989.
The tenth revision included a supplementary classification of impairments,
disabilities and handicaps.
25.10.1951 Conservative government 1953 Mental £millions. Almost half the National Health Service's hospital beds were for mental illness or mental defect. Hospitals generally were in old buildings, but those for mental illness included some of the worst buildings. From 1953 the government set aside substantial, if inadequate, sums of money for their improvement - The Mental £ millions. Spending on this sector in West Yorkshire reached a peak of 37% of the hospital budget in 1955/1956. Government thinking appears to have been precipitated into community care policies by the prospect of spending even larger sums on renovating the old asylums. Autumn
1953 Lancet article described the three British mental hospitals
with open door policies: Dingleton Hospital, Melrose, Scotland (since
1948), Mapperley, Nottingham and Warlingham Park Hospital, Croydon. [ External link to chapter in David Clark's book describing
visits.] In 1954 out-patient nurses were appointed at
Warlingham Park to visit out- patients and in-patients who had been
discharged. External link. Chlorpromazine. This drug started being sold in 1954 or 1955. In America it was called Thorazine, in the United Kingdom, Largactil. It was the first of the anti-psychotic phenothiazines. In a "psychotic", as opposed to a "neurotic" illness, the patient is held to have lost contact with reality. The phenothiazines controlled the symptoms of many patients without having the sedative effects of previous drugs. They controlled, not cured, and were sometimes called "chemical straight-jackets". Use of phenothiazines could make the established movement towards community care easier and less risky. Their effect, in this respect, became clearer with the introduction of long acting phenothiazines in the 1970s. 1955 onwards: Substantial sums of money for construction of new hospitals
1957 May 1957: Royal Commission on the Law Relating to Mental Illness and Mental Deficiency (1954 to 1957) reported The key themes of the Percy Report were: That mental disorder should be regarded "in much the same way as physical illness and disability" (paragraph 5) That hospitals for mental illness should be run as nearly as possible like those for physical disorders. See 1959
By 1959 only 12% of admissions to mental illness hospitals were compulsory, and the trend was towards shorter periods of in-patient treatment and towards outpatient treatment. Whilst in 1930 there had been practically no outpatients, by 1959 there were 144,000 attendances at outpatient clinics. ( Maclay, W.S. 1961, p.98) It is the above change that people are generally referring to when they speak of the therapeutic revolution of the 1950s.
Dr Russell Barton's Institutional Neurosis outlining the symptoms of a disease that often (but not always) developed as a result of being in an institution. (See dictionary) 1960s
Along with the new openness about mental illness came the possibility of open debate. In America, The Myth of Mental Illness (1961), by Thomas Szasz was published. It contained a theoretical basis for arguing that the states of mind described as "mental illness" are not "illness" but actions for which the mentally distressed person must be held responsible. [See Mental Health and Civil Liberties]. In France Michel Foucault's Histoire de la Folie told the history of unreason in an age of reason in a way that the English speaking world was not yet ready for.
1964 Labour Government 1966 statistics In 1966 there were 107 mental illness and 66 mental handicap "hospitals and units with 200 or more beds". (Hospital Statistics 1975, pp 5+7). In 1966 Borocourt Subnormality Hospital was a well equipped one. Few subnormality hospitals had anything but Victorian type institutional wards, but the largest Borocourt one had only 30 beds. In the late 1960s Oxford Regional Health Authority spent 1.25 million pounds at Borocourt on nine completely new wards, upgrading old wards and building a school, a gymnasium and a workshop. 1966 5.6.1966 Mental Health Week The Observer Colour Supplement began a three part coverage on changing attitudes to madness down the centuries. The third part was John Gale's personal account.
The 1960s concentrated attention and resources on the treatment of short term mental illness. There was a corresponding neglect of long-stay patients, along with a failure to implement the community care side of the new policies. The scandals of the late 1960s and 1970s shone a light on the consequences. 1967
Sans-Everything - A Case to Answer Sans-Everything was a collection of articles edited by Mrs Barbara Robb that dealt with the condition of elderly residents in institutions. It included accounts of individual cases of ill-treatment in psychiatric and geriatric care. The official report into its allegations substantiated many of them. The establishment in 1972 of a Health Service Commissioner ("Ombudsman") to investigate complaints of individual ill-treatment, followed suggestion made by Professor Abel-Smith in Sans-Everything 1969
Ely Hospital Inquiry Report The light shone into mental subnormality (handicap) hospitals with the publication of official reports into Ely Hospital, Cardiff, in 1969; Farleigh Hospital, Somerset and Coldharbour Hospital, Sherbourne, Dorset, in 1971. Richard Crossman, Secretary of State at the time, responded to Ely as a personal challenge. He launched a programme of additional resources to the mental handicap hospitals, established (November 1969) a Hospital Advisory Service to visit hospitals - especially long-stay ones - and advise him on their condition, and stared a re-appraisal of plans that eventually surfaced as the white paper Better Services for the Mentally Handicapped The National Association for Mental Health (1969/1970 Annual Report) had a "perverse" regret that there had not been a scandal on the same scale as Ely in a hospital for the mentally ill whilst Crossman was Minister, to stimulate an "accelerated re-appraisal of their needs and progress". It was coming, but by the time the Whittingham Inquiry reported the government had already announced its intention to scrap the old asylums and replace them by "comprehensive psychiatric services" in each district.
In the late 1960s Hospital Boards were informed of a change in government thinking. Instead of just acute, short stay, psychiatric units, they were asked to provide a comprehensive service for all patients at District General Hospitals (Ham, C. 1981 p. 129). This changed thinking was incorporated into Hospital Services for the Mentally Ill in December 1971. November 1969 Establishment of "Hospital Advisory Service". Fluphenazine (Modecate). The first long-acting anti-psychotic phenothazine was tested at All Saints Hospital, Birmingham. By one injection every few weeks it was now possible to ensure people were medicated even whilst living outside hospital. Patients needed to be readmitted only if they refused their injection. If a patient did not keep an appointment at the "Modecate clinic", a psychiatric community nurse would visit to see what was happening. June
1970 Conservative Government 1971
Statistics
In April 1971 Local Education Authorities became responsible for the education of all mentally handicapped children, however severe their handicap, under the 1970 Education (Handicapped Children) Act. As a result of the Act some level of education had to be provided for every child from five to fifteen years old. As well as providing education for the children, this meant that parents of severely handicapped children were relieved of their care during the day. The Jay Report in 1979 thought this had had such an impact on the lives of families with severely handicapped children as to partly explain why far fewer children went into residential care in the 1970s.
Better
Services White Papers June
1971: Better Services for the Mentally Handicapped
Campaign for Mentally Handicapped People The White Paper fell short of what members of Crossman's working group desired. One of them, Peter Townsend, published his disagreements in the Sunday Times on 27.6.1971, the week after the paper was published. He believed the hospitals should have been phased out altogether and that the proposed 25 bed hostels for those who left hospital were:
"a system of minor isolated barracks put up by local authorities in pale imitation of the larger Victorian barracks which are at present run by the hospital authorities" Townsend wanted mentally handicapped people to live in small houses resembling private housing. A similar position was taken by the Campaign for Mentally Handicapped People (CMH), a group started in 1971 in the belief that people with a mental handicap:
had a right to live lives as close as possible to those of other people
should participate as much as possible in the decisions that affect their lives
should use the same services as everyone else This policy of normalising the lives of disadvantaged and stigmatised groups has since been called normalisation. It is the converse of the Social Darwinist policy of segregation. Social theory, though not social reality, had turned full circle December
1971: Hospital Services for the Mentally Ill
January 1972. The film Family Life told a story of Janice who, as a consequence of family conflict, received two types of psychiatric treatment. Group therapy helped her, but drugs and electroconvulsive therapy broke her spirit. The film (and the television play that preceded it) dramatised the theories of Ronald Laing and David Cooper.
February 1972: Whittingham Hospital, just outside Preston in Lancashire, had 3,200 beds in 1953 and 2,045 in 1971. It was one of England's largest mental hospitals, though shrinking as active psychiatry was moved to District General Hospitals in Preston. Allegations of ill-treatment and the conviction of a male nurse for the manslaughter of a patient, led to an inquiry, which reported that for many of Whittingham's patients "the therapeutic revolution of the 1950s" never happened. Almost half had no occupation during the day, but sat around "becoming cabbages". On one ward, 126 patients were cared for by just six nurses. Doctors did not visit long stay wards, but concentrated on acute work and their work outside the hospital. The inquiry conclude that the English mental health system was dividing into "well staffed 'acute' units and 'long stay dumps'".
The establishment of Psychiatric Units in General Hospitals was also squeezing out community therapy. Community therapy aimed to develop patient self-determination. It was perhaps, not surprising, that squeezing led to patients taking part in the protest. 3.3.1972: "800 people crowded into a meeting at Sidney Webb college on 3rd March to discuss the threatened closure of the Paddington Day Clinic, a therapeutic community. The opening of a psychiatric unit in a nearby general hospital has been given by the Regional Hospital Board as the reason for making the hospital redundant. The patients and staff of the P.D.H. have formed a protest group to oppose this proposal because they feel the work done in this hospital is concerned with increasing the individuals awareness of the problem rather than blotting out the symptoms it may produce". First paragraph of an article signed by Nicky Road, Anna Chadwick and Keith Venablesin Politics of Psychology Newsletter 12.3.1972
October 1972: Services for Mental Illness Related to Old Age
SUMP (Scottish Union of Mental Patients) formed by Tommy Ritchie and Robin Farqhuarson. This was the first union of psychiatric patients in the United Kingdom that I know of. In December 1972, a group of people in the London area produced a pamphlet on The Need for a Mental Patients's Union arguing that "psychiatry is one of the most subtle methods of repression in advanced Capitalist society". This was circulated to psychiatric hospitals and various places where ex-patients were likely to congregate, together with notices of a meeting to be held during March 1973 to discuss the formation of a union. Wednesday
21.3.1973
Economic crisis and cuts: Community care policies from 1961 to 1972 assumed continuous economic growth, from which they would be financed. The Arab- Israeli war of October 1973, and the Arab oil embargo, signalled a long period of economic problems. The (Conservative) government responded with drastic cuts in health and welfare capital expenditure, and the cuts were continued and later increased by the subsequent Labour government. February 1974 Labour Government 1974: Mind Report: Co-ordination or Chaos? Secure accommodation April 1974: Interim report of the Butler Committee. As a result of this, a network of Regional Psychiatric Secure Units was planned for England and Wales. By the 1970s, Broadmoor was seriously overcrowded. On a visit, I looked through a window and saw a sea of short haircuts so close that one could have walked across the room from one head to another. Partly to relieve this pressure, a new "Special Hospital", called Park Lane, was built on land next to Moss Side. The first 35 patients moved in in 1974. February 1975: Barbara Castle's Mencap speech October 1975: Butler Committee Report and Better Services for the Mentally Ill
1976 Peak in mental hospital admissions (falling since) The actual numbers in hospital had been falling since 1954 Between 1970 and 1975 the population of mental illness hospitals was reduced from 107,977 to 87,321. The population of mental handicap hospitals was reduced from 55,434 to 49,683 (In-Patient Statistics 1975, tables A8 and B10). The statistics were said to reflect the success of care in the community, but some argued that the fall had been achieved by discharging patients to families ill-equipped to cope with them, to private hotels that exploited them or, in some cases, onto the streets. Better Services for the Mentally Ill acknowledged that such things happened, and said:-
"the public... cannot be expected to tolerate under the name of community care the discharge of chronic patients without... after-care... who perhaps spend their days wandering the streets or become an unbearable burden on the lives of their relatives... Such situations do not occur very frequently; but where they do, the whole concept of community care is placed at risk" (par.2.27) On January 12th 1976, the Daily Mirror sensationally questioned the claim that discharge from hospital without inadequate care was infrequent. It ran a feature by John Pilger sub-headed:
Dumped on the streets and in the slums - Birmingham was headlined as
The city of lost souls A West Midlands Health Official said the DHSS had "applied the screws" to mental hospitals to "decant" patients. Pilger commented that "to be decanted is to be dumped", if you have not got families or friends to take you. The Midlands organiser of MENCAP told him:
"In a few years... you'll be able to see them dying in the streets"
Pilger's report showed a seamier side to this policy. In Birmingham, an array of guest houses, hotels and boarding houses flourished on the trade in ex-patients. One landlady told Pilger:
"We pick them off the streets or the hospital rings us up and says 'can you take a few?'" She had "a cupboard filled with... prescribed tablets... to keep them quiet". Although this was one of the better hotels, residents still sat all day
"looking blankly at each other... or at the television" [or went] "to St Agnes's hall to stuff toys - 'occupational therapy'" In one of the worst establishments patients had been slept
"nine in the attic some of them less than four feet from the ceiling" [and fed on "two slices of bread and dripping and a third of a sausage roll" A councillor reported seeing guests
"with scabies and lice. They had dirty clothes and ten men had no vests and underpants" A Birmingham Social Services' spokesman said it was not uncommon to find "disturbed and frightened people" wandering about the railway station:
"having just arrived with a travel warrant from hospitals as far afield as London and Scotland. The word seems to have got out that Birmingham has places that will take them." Hundreds were said to be "just wandering". The Salvation Army hostel said "up to 30%" of the people it took in "from the streets" were ex-patients. "The overwhelming majority" of those who queued "in the cold every night" outside a Catholic refuge were "psychiatric patients". Whose fault was it? According to Pilger, Birmingham Social Services blamed the hospitals and the hospitals blamed Social Services.
Parkinson's
Group
A debate
in the House of Commons on better services for mentally ill people
was moved for by the Conservative opposition in January 1976. Shortly
before the debate, the shadow health minister, Norman Fowler, asked
Cecil Parkinson MP to form a Conservative Party policy group on the progress
that had and could be made towards community based services for
mentally ill and mentally handicapped people. It was an issue of
special interest to Mr Parkinson because his constituency, Hertfordshire South, contained three large hospitals
for mental illness and two for mental handicap, only one of which
served the constituency - the others received their patients from
North London. February 1976 The film One Flew Over the Cuckoo's Nest dramatised the 1963 novel by Ken Kesey about the way asylums change the personalities of people who become their in-patients. The novel and film popularised the theories of Erving Goffman, in Asylums (1961)
Beech Tree House, Hertfordshire, was established
by the Spastics Society in 1977 to demonstrate that even the most
severely disturbed children from mental handicap hospitals could
be successfully educated given sufficient resources and the right
approach. April
1978: Children Living in Long Stay Hospitals On Our Own. Patient-Controlled Alternatives to the Mental Health System by Judi Chamberlin gave Judi's "patient's view of the mental health system", an account of her own treatment, and an account of communities run by their users. The book drew on the work of colleagues in Mental Patients' Liberation groups in North America, but also used some United Kingdom material. 1979
May 1979 Thatcher Government 1981
Statistics
Silent
Minority can still be seen. It can be bought or rented from Concord Video and Film Council. On their web site,
click on education, then learning difficulties, and scroll down.
Care
in the Community and the Parkinson Report
Care
in the Community applied especially to mentally handicapped,
mentally ill and elderly patients (in that order).
Peter Sedgwick's Psychopolitics, published in 1982, criticised the anti-psychiatry movement of the 1960s/1970s theoretically and politically. Sedgwick's political criticism of the Myth of Mental Illness idea was that it undermined efforts to secure community care resources for those who suffer from mental distress. Mental Health and Civil Liberties We Can Speak for Ourselves. Self-Advocacy by Mentally Handicapped People, by Paul Williams and Bonnie Shoultz. This American book said that mentally handicapped people usually had decisions made for them about every detail of their lives, but that through the Self-Advocacy Movement many were learning to formulate their own needs, to put forward their demands and to campaign to win them. 1983 Mental Health Act. Under the 1959 Mental Health Act it is legally unclear whether a legal order to detain in hospital, against a person's wishes, empowers the hospital to impose medical treatments. If it does (which was generally accepted), there were no controls in the Act of the treatments imposed. The 1983 Act places legal controls on the application of medical treatments, particularly surgery, electro-convulsive therapy and mood- altering drugs. Section 117 imposes a duty on local Social Services Authorities as well as Health Authorities to provide aftercare services for some mentally disturbed patients who have ceased to be detained and who leave hospital. 1984
1986 Disabled Persons Services Consultation and Representation Act. Under this Act, Social Services must assess the needs of disabled people on request for certain welfare services and local authorities must provide to meet those needs if they decide it is necessary. Including provision or help over telephone, television, radio, library facilities, holidays, recreation, access to education, transport to and from services, social rehabilitation and adjustment, occupational, social, cultural and recreational activities. Disabled means "Blind, Deaf or dumb or who suffer from mental disorder of any description or who are substantially and permanently handicapped by their illness, injury or congenital deformity" Empowerment In 1986 the compilers of the Oxford Dictionary noticed that an old (1690) Quaker word had re-entered the vocabulary with a secular meaning. Individuals and groups were being "empowered" to be stronger and more confident in controlling their life and claiming their rights. The word must have spread quickly: The 1985-1986 Report of City and Hackney Community Health Council, for example, was called Empowering the Users of the Health Service. "Developments in mental health services", it said, will not work well unless they are supported by the people that use them and so the CHC believes they should have a say in planning them and a continuing say in how they are run". A similar theme ran through all issues. 1990: National Health and Community Care Act 1991 Survivors' Poetry founded by Frank Bangay and others. From Dark to Night, an anthology edited by Frank Bangay, Hilary Porter and Joe Bidder, was published by the Survivors Press in 1992. In 1999, an illustrated collection of Frank Bangay's poems Naked Songs and Rhythms of Hope (1974 to 1999) was co-published by Spare Change Books, Box 26, 136-138 Kingsland High Street, Hackney, London, E8 2NS and Survivors Poetry, 34 Osnaburgh Street, London, NW1 3ND. In 2001 A True Voice Singing, a CD of Frank Bangay reading fifteen of his poems to musical backgrounds, was published by CORE Arts. Frank Bangay can often be heard performing at the Krazy Kats n Dogs Klub Homeless mentally ill people not ex-patients of the asylums. Who are they? October 1994: In Finding a Place: A Review of Mental Health Services for Adults, the Audit Commission found that the favoured policy, of individual, locally based care within the community, was "struggling".
May 1998: Audit Commission published Home Alone: The Housing Aspects of Community Care September 1999: Audit Commission published Children in Mind: Child and Adolescent Mental Health Services January 2000: Audit Commission published Forget Me Not: Mental Health Services for Older People Spring 2000: Rossbret workhouse and hospitals (including asylums) mailing list established in Birmingham. Supported by people engaged in family history, the list and its website reflect a major change in social attitudes from the days when a relative in an asylum was a closely guarded secret. Valuing People: A New Strategy for Learning Disability for the 21st Century Department of Health March 2001. The first white paper for people with learning disability since Better Services for the Mentally Handicapped in June 1971.
January 2003 Making Things Happen Better, the first annual report of the Learning Disability Task Force will be available online soon (we hope!). It is available free by phoning 0808 8081111 and you can read a Guardian Review online
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